Illness Etiquette for Dummies
I didn't think that this would be necessary - but it is. . .
1. Imagine yourself in the ailing person's place.
I haven't observed many doing this, and it is very important.
2. Do not visit if you are hacking, coughing or sniffling.
They're already sick. Enough said.
3. If there's a sign on a door that says to check at the nurse's station before entering a room - do it.
It is there for a reason.
4. Do not question the person, nurses, doctors or care givers about the person's health.
Are you a doctor - or are you writing a book?
5. Do not ask the person, nurses, doctors or care givers, “When are they going home?”.
Most of the time, we wish we knew. You don't need to remind us.
6. Do not go into someone's hospital room while they are asleep and park yourself at the foot of their bed until they wake.
This happened a few times. One time the Baron thought that he woke up in hell, since he was surrounded by people that he did not want to see.
7. Do not visit someone that you would not visit normally. It's disconcerting to have a parade of visitors who you never socialized with suddenly showing an interest in you.
This happened too many times.
8. Do not start discussing work or business.
Try once again to understand the concept of rest, recuperation and no stress.
9. If you are told that the person is sleeping, resting, bathing, “not up to company”or needs their rest - respect that.
I don't understand why this is so hard.
10. If a person tells you that they are tired, or ready to go to sleep - leave or hang up the phone.
This seems simple to me, too.
11. If a person is obviously tired, even if they're not saying it - leave.
Pretty simple. I remember when my Dad was in the VA. If he looked tired, someone would say, “Come on, let's go down to the coffee shop and let John get some rest.” That was close to thirty years ago. Not one person did this for my husband the last month. Just because you enjoyed company when you had your hernia operation, stroke, heart attack - fill-in the blank - does not mean that the ailing person is anxious for company. So you can stop telling us about that, thank you.
General Stupid Questions Not to Ask:
A. “When are you getting out of here?”
See #5 above.
B. “What's the prognosis?”
See #4 above.
C. “Where's the cancer?” also heard as “What kind of cancer do you have?”
I feel that it takes a lot of courage for a person to share that they have a serious illness, including cancer. I don't think that everyone has to know every detail of the illness. The fact that someone is brave enough to tell you this should be sufficient. We're not keeping secrets here. But this is a very private matter. See #1 above. My husband chooses to tell who he wants what he wants. I'm respecting that.
D. “What exactly is going on?”
This is when someone wants to know everything. I'm sorry, but it would take several hours to go into. I simply do not have the time or the energy. And again, why do you need to know? Accept the fact that my husband is ill and that he has faith in his God , his doctors, his nurses and his wife.
1. Imagine yourself in the ailing person's place.
I haven't observed many doing this, and it is very important.
2. Do not visit if you are hacking, coughing or sniffling.
They're already sick. Enough said.
3. If there's a sign on a door that says to check at the nurse's station before entering a room - do it.
It is there for a reason.
4. Do not question the person, nurses, doctors or care givers about the person's health.
Are you a doctor - or are you writing a book?
5. Do not ask the person, nurses, doctors or care givers, “When are they going home?”.
Most of the time, we wish we knew. You don't need to remind us.
6. Do not go into someone's hospital room while they are asleep and park yourself at the foot of their bed until they wake.
This happened a few times. One time the Baron thought that he woke up in hell, since he was surrounded by people that he did not want to see.
7. Do not visit someone that you would not visit normally. It's disconcerting to have a parade of visitors who you never socialized with suddenly showing an interest in you.
This happened too many times.
8. Do not start discussing work or business.
Try once again to understand the concept of rest, recuperation and no stress.
9. If you are told that the person is sleeping, resting, bathing, “not up to company”or needs their rest - respect that.
I don't understand why this is so hard.
10. If a person tells you that they are tired, or ready to go to sleep - leave or hang up the phone.
This seems simple to me, too.
11. If a person is obviously tired, even if they're not saying it - leave.
Pretty simple. I remember when my Dad was in the VA. If he looked tired, someone would say, “Come on, let's go down to the coffee shop and let John get some rest.” That was close to thirty years ago. Not one person did this for my husband the last month. Just because you enjoyed company when you had your hernia operation, stroke, heart attack - fill-in the blank - does not mean that the ailing person is anxious for company. So you can stop telling us about that, thank you.
General Stupid Questions Not to Ask:
A. “When are you getting out of here?”
See #5 above.
B. “What's the prognosis?”
See #4 above.
C. “Where's the cancer?” also heard as “What kind of cancer do you have?”
I feel that it takes a lot of courage for a person to share that they have a serious illness, including cancer. I don't think that everyone has to know every detail of the illness. The fact that someone is brave enough to tell you this should be sufficient. We're not keeping secrets here. But this is a very private matter. See #1 above. My husband chooses to tell who he wants what he wants. I'm respecting that.
D. “What exactly is going on?”
This is when someone wants to know everything. I'm sorry, but it would take several hours to go into. I simply do not have the time or the energy. And again, why do you need to know? Accept the fact that my husband is ill and that he has faith in his God , his doctors, his nurses and his wife.






22 Comments:
Karen, I'm sorry to hear your husband is ill. My thoughts are with you.
I was so sorry to hear of the Baron's illness. Lots of hugs and thoughts your way.
Everyone should read this! Maybe you should print it out so hospitals can hang it on every door.
Hang in there! Our thoughts and prayers are with you both.
People can be unfeeling asses. You told them and you told them well. I wanted to comment on the previous post but I was too tearful It was beautiful. I have never had a love like that. I hope you have all the time you need. My mom has been married to my dad 68 years come Feb7th if he makes it and she still wants more. When you love like that forever is not long enough.
Oh How I agree with you! I get this all the time with Sean. He doesn't have cancer, but is either sick or having surgery...
One of my least favorites:
Will this surgery remove all his birth defects and make him whole?
Heck no!
Oh that is too bad, but why not?!
praying for you and the Baron!
Good to hear you are both home and god hope I did not ask any of those questions ;-)
Going through this myself I FULLY understand what you are saying
Stay safe and warm and keep your chins up
Karen, thank you for this. I have adapted it, for visiting the chronically ill, at Abide.
My thoughts to you both.
*hugs*
I hope that was OK.
:D
Karen, I admire your common sense,forthrightness,courage but most of all your unrelenting respect for yourself and your loved one.Good for you!
ENOUGH SAID THERE SIS. Love Steve
Note to self: when ill, tell people it's something very contagious.
Best wishes.
Sadly, we no longer live in a polite society.
It hasn't been all that long since I sat on the sidelines as someone very close to me went through treatment after treatment ... just so she could be on this planet a little longer to spend time with my daughter (her granddaughter).
If that's not courage ... then I don't know what is.
Once again ... all of my thoughts are with you and your husband.
You're in my thoughts - all I can do is send you a cyberhug.
When my friend Pie was so ill she kept getting cards that said "hope you feel better soon". yeah right. She was terminal. Those cards were tossed across the room in disgust. She liked the thinking of you cards and the funny cards. And the sometimes life sucks cards. Because sometimes it does.
While are of your points are valid and well taken, it's always a good idea for the patient and his/her caregiver to remember that most folks (in their ignorance) really mean well, even if they do come across as unfeeling at times. (I know that when I've been sick--I was flat on my back for almost three weeks many years ago with pneumonia--I was a goddammed pain in the heinie to my caregiver--which was me. Nobody else wanted to come near.)
When Lou Gehrig (the legendary baseball player) was diagnosed with ALS (the disease that would henceforth bear his name), his teammates on the Yankees would keep their distance from him for fear the disease was contagious (it is not). We know so much about many diseases, but what is so scary is that there's so much we still need to learn (and that includes doctors). My ma suffered on and off for 25 years--which just means that God will take you when He's ready. And in the Baron's case, I'm hoping it won't be for a long while--that this is just another test of his character.
By the way--diabetes isn't contagious either. (I've had to explain that to folks a time or two.)
Kirk
Be grateful people are coming around.
Patia - Thank you.
Rachel - Thank you.
Roo - Thanks. But I think that no one will recognize themself.
Catma - You're right, it isn't long enough.
Shelly - It doesn't matter what the illness. I do understand that when we don't know what to say, stupid things tend to come out of our mouths. Plenty of stupid things have come out of mine. . . Hugs for Sean, friend.
Mike - Thanks for being there - and you can ask any questions you'd like!
SB - Thanks. Oh, and since we're home now we must be up to entertaining. Sigh. . .
Zen Panda - That was AOK, thank you.
Linda - Thank you.
Steve - Are you channeling Mom with the caps? I know, I know, I need to work on my shyness.
Richard - Good one. Thanks.
Robert - Thanks, you are right on about courage.
Guusje - Very familiar. . . thanks for the hug.
Kirk - Oh, I know about well-meaning. I too, have had extensive hospital stays & recuperations. I just don't comprehend the people who are suddenly interested - really - folks who have had nothing to do with us before. And it seems that they obviously have been watching too many TV medical dramas. Hugs for Sheba.
Anonymous - We are grateful for the wonderful friends, family and neighbors that we have. But we are exhausted by the folks who never gave a damn about us before who are now hovering.
You go, girl!! Linn
I always think that a person in the hospital is in their bedroom. I would never barge into someone's bedroom unannounced... So I prefer to communicate that I'm happy to come by to see them and let them invite me...
Also, there is the human tendency to interrogate to try to find out the cause of the disease...
Questions like: Did you smoke? Do you eat white flour? Or did you always wear a condom?... are more about the questioner trying to calm their own fears of their own mortality than providing comfort for the other person...
Also, take candy... Even if the person can't eat them or doesn't want them... It's for the staff... You want the staffers dropping in as often as possible... So offering them candy brought by a guest is a sure way to set a good mood of hospitality and the staffers WILL be by more often!
Take care Karen! And well wishes to the Baron.
Welcome back! I have thought of you and the Baron often and sent wishes of health and good cheer with each passing reflection.
Yikes to #6; poor Baron! Your list is pure genius - it's awful it's based on your true life experience. I like the idea of taping it to every hospital door.
Rest now my lady.
Your list was a real wake up. I am sure that I have asked such questions in the feeble search for SOMETHING to say. I will think harder before I speak in the future. It would be great to put such a list in the hands of hospital visitors!
Well if your inconsiderate enough to have done any of those things, you deserve a swift kick in the arse. So if you need any help with arse kicking I definately volunteer my services Karen.
Ill light a candle for you and your hubby tonight, and hope that the good vibes reach you both.
Kara
Good Luck -- You are both in my thoughts...
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